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National support contacts

National Support Groups

There are a wide number of groups available to support families with children with specific conditions and rare syndromes and their websites are listed below although we cannot vouch for the quality of the support they can provide.

Angelman syndrome :- www.angelmanuk.org

Attention deficit hyperactivity disorder :- www.adhdandyou.co.uk

Autistic spectrum disorder :- www.autism.org.uk

Cornelia de Lange syndrome :- www.criduchat.co.uk

Down's syndrome :- www.downs-syndrome.org.uk

Foetal alcohol syndrome :- www.nofas-uk.org

Fragile X syndrome :- www.fragilex.org.uk

Hemiplegia :- www.hemihelp.org.uk

Joubert syndrome :- www.jsrdf.org

Lowe syndrome :- www.lowetrust.com

Prader-Willi syndrome :- www.pwsa.co.uk

Rett syndrome :- www.rettuk.org

Rubinstein Taybi syndrome :- www.rtsuk.org

Smith-Lemli-Opitz syndrome :- www.smithlemliopitz.org

Smith-Magenis syndrome :- www.smith-magenis.co.uk

Sotos syndrome :- www.sotossyndrome.org

Spina Bifida and Hydrocephalus :- www.shinecharity.org.uk

Tourette syndrome :- www.tourettes-action.org.uk

West syndrome :- www.wssg.org.uk

Williams syndrome :- www.williams-syndrome.org.uk

Wolf-Hirschhorn syndrome :- www.whs4pminus.co.uk

Worster-Drought syndrome :- www.wdssg.org.uk


Other useful sites

National health :- www.nhs.uk

National institute of neurological disroders and stroke (NINDS) :- www.ninds.nih.gov

Speech and language impairment :- www.ican.org.uk

Scope - www.scope.org.uk

Contact a family - for families with disabled children:- www.cafamily.org.uk 

Mencap - www.mencap.org.uk


Support for Siblings

There are many sources of support for siblings of children with learning disabilities which can be access through the following websites:




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